Showing posts with label Kiahna. Show all posts
Showing posts with label Kiahna. Show all posts

Wednesday, June 13, 2012

This morning’s newsfeed…

Deep sigh…

This morning an article showed up in my newsfeed How to stay sane & survive fetal alcohol spectrum disorder.  Wow, who came in to my house & read my mind & wrote this article? 

Some of the challenges in dealing with the severe meltdowns that we have here center around #1 my fear of her hurting someone else or herself so I step in & intervene & things escalate.

#2 when the meltdowns, poor behavior, language happen around other people who then in turn will either try to “help” me with her or I begin to feel like I should be doing something more or different than what I am to make sure that this behavior stops.

Did this  yesterday.  Twice. Family vacation is ahead, I know it’s going to be difficult. 

When you look at Kiahna without much knowledge of FASD, Autism, SPD or ADHD… all you can see is a spoiled, mouthy brat.  She should be “disciplined” she “shouldn’t be getting away with this” she “is a product of being raised by a single mom” she “just needs a good strong father figure to discipline her” she “needs a spanking”…

Well, some days I fall into that line of thinking.  Those are the really bad days.  The days that nothing gets better & things just get worse & worse.

Understanding that there is a disconnect between “cause” & “effect”… that the same lessons must be learned over & over & over again.  That the level of maturity of her brain is not that of someone who is almost 8, but more in line of her 3 year old cousin.

If you didn’t link over to the article I mentioned in the beginning, here is a photo from that article, that maybe you have or haven’t seen…

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Absolutely heart breaking.

I like how Jeff says he has a copy of this photo in his wallet to take out & look at to remind him.

Part of me really still struggles to believe that my beautiful little girl really has this kind of life long disability.

But her growing behavior issues…okay, maybe they aren’t really growing, but maybe the fact that she is growing & the behaviors are just looking more & more awkward because the “average 8  year old” would not act that way.

I really have no idea what I am doing or how we are going to get through this.  I can’t tell you how.

Our needs are much prayer support.  Physical support if it can be done with a knowledge of FAS & it’s buddies.  Emotional support.  Respite.  Education for all of us.  Wisdom.  Protection for all of us. And more prayer.

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Pam

Monday, May 28, 2012

So, what is it?

I have been learning a lot on the road of life… Not things I ever dreamed I’d learn.  Or ever had any desire to learn.  It’s good things.  Things that I never knew I needed to learn. 

God has a way of doing that when we have the desire to do what He has asked of us.  Funny how simple it feels to pray that prayer & then how hard it is to actually live out a life that does that.

Been struggling with trust again.  Been struggling to try to figure out things that I just might not ever figure out.

You probably know that my youngest daughter was diagnosed with Fetal Alcohol Syndrome a few years ago.  More recently we have added Sensory processing disorder to her diagnosis.  And now we are on the verge of adding an Autism label to her list.

A new therapist we have began working with puts it well when she says “it doesn’t really matter what you call it, you still have to deal with the behaviors”… so true.

The humanness in me want to get a name to it.  Then I want it fixed.  I want a solution.  I want a pill. 

Uhg.

Sorry, if this is a repeat for many of you to read again. 

I feel like I am learning more & more about her… but still have a boat load of things that I don’t understand, & I don’t know if I will ever understand.

This is what I know.

  • Transitions are hard
  • Change is hard
  • Language understanding & communication & comprehension are hard
  • social interaction is hard
  • friendships are hard
  • judging right & wrong choices is hard
  • overstimulation leads to melt down tantrums
  • she is getting stronger & her violent outbursts are getting scarier
  • medication is not helping much at all
  • Shes on a ton of vitamins & it’s hard to know if they are helping much.  The best one I have found has been Gaba.
  • Shes extremely defiant & strong willed.
  • there is no cure
  • emotionally she is at about the 2-4 year old range.  She has matured in the past year for sure, but still isn’t where she should be.
  • Occupational Therapy is extremely helpful.  It’s needed on a very regular basis… sometimes every 15 minutes depending on what is going on.
  • When she’s having a tantrum if I pray she says things that make me feel there is a very real Spiritual aspect to this also.

I am in way over my head, I know that.  I have been blessed with incredible support at school, but they feel over their heads too many times.  We have began work with a new counseling/therapy place & discontinued working with the one we were with after months of really know progress & 3 people leaving that facility.

Specific prayer requests.

  • Help, healing & support for all of us.
  • Wisdom
  • Safety for her & those around her when she goes into tantrum mode.
  • A MIRACLE

“God lead us to Your plans & Your path for this baby girl.  You have a plan.  We need help to know how to follow that plan.  Bring us the help & support that You have for us.  Open the door that no man can open & close the doors that do not lead us to the things that are Your will”

Pam

Monday, May 21, 2012

Choosing to blog to get my thoughts in order?

Might not be the best choice?  Maybe I won’t publish?

Kiahna has went from “horrific” to “very manageable” over the past week.  I give the credit to God & the prayers.  He gives wisdom when we ask.  He keeps me asking.

Took her off of one medication. Added some more vitamins/herbs. 

Medication we came off of was the steroid inhaler for her asthma.  Behaviors had declined after getting that back into our lives with the allergy season upon  us.  Her asthma symptoms (she has never had an attack) appear to be related to her allergies.

One of the vitamins we added to our lives was Gaba.  If you have a kid or yourself with behavior issues, anxiety issues.  Run, don’t walk, & get some Gaba.  Seriously.  I have never seen an immediate result in a herb/vitamin like it appears I am seeing with this.  Very inexpensive.  I ordered mine from this site.

Tomorrow is the last day of school.  Kiahna woke up this morning & said to me, “Is today I am going to second grade?”  Poor kid!  No wonder she has anxiety!  Even when she’s been told over & over, she still doesn’t understand what’s going on sometimes.  The world she lives in is very confusing.  It’s hard for me to remember that.  I’d have anxiety too.

Zach is ending his junior year.  I am struggling to trust him.  I am struggling with anger at some teachers/coaches for their impatience with him.  I am struggling with fear.  I dread his senior year.  And I hate all those things in myself.

Quote from Zach last night “In one year I will be in college and you won’t have to worry about me any more”….   oh Zach you have no idea/

My biggest concerns right now for him are his self esteem.  Self worth.  God being allowed to work in his life as we go through the hard days ahead.

Hard in ways like, the 3 game suspension he has hanging over his head for the football season that is up & coming.  The football season that meant everything to him.  Hard in a way that I am not sure that even after the suspension is over that the coach will allow him to play.

Hard in ways like the fact that I am very involved with the mother’s portion of the team.  Very, very, very difficult for me to watch my son be treated a certain way for discipline I don’t agree with & pour my heart & time into working on.

We both have some tough days ahead.  Consequences are hard.  But even harder if they are consequences you are facing for someone else's decisions.  HARD!

Lucas had his 14th birthday last Friday.  He is growing up in his quiet way in a house full of a lot of “stuff”.

James is home for most of the summer & working hard.

Everyone else seems stable at the moment.

Working hard on my business.  God is blessing it.  I am loving it. 

DEEP BREATH.

Summer break will be good.  Right. Right?  Right.

Pam

Sunday, May 13, 2012

A Mother’s Day post

I’ve been absent again… too much to do to take the time to sit down to write about it all again…

It’s Mother’s Day.  It’s been good.  I ordered a gift for my mom early…

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It was a gallery wrap of all of us on the beach this spring break…

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She’s easy to buy for, pictures of her family are her love… she is everything that anyone could want in a mom.  Devoting all her life to her family.  We are blessed indeed.

Mother’s Day as a single mom is something that I have tried very hard over the years to not lose my focus.  I keep my expectations low… & then I get some surprises.  Leah got up and made breakfast… all the boys remembered to at least say “Happy Mother’s Day” so that was good.

Its good.  I don’t need things.  I don’t need attention.  I don’t love the day.  I have learned not to let myself get worked up with unmet expectations.  It’s a trap. It’s from hell.  It’s not where I am going to let myself go.

Yet, I found myself in the midst of the day, dealing with my daughter & her emotions.  Her tantrums that have been on the rise.  Her anger.  I found myself weeping.  Unable to stop.  Unable to let the disappointment go.  Not necessarily because of the day, but perhaps that why it was harder.  I was working so hard to keep myself under control & not give in to those unmet expectations.

Kiahna’s behaviors have grown worse.  I have been working with medications yet again to try to help her level out.  I thought I had it figured out.  Today when she ran from me in church and hit me & told me how much she hated me.  It was sheer disappointment that ran through me.  I thought I had figured out what was going to help my baby girl. 

I don’t know.  I don’t know what’s going to help her.  I don’t know what the future holds.  I don’t know how long I can keep parenting her with these fits of anger.  I just don’t know.

I know the ONE who does know.  He seems a little quiet & slow to my human mind on this one. 

I am trying to wrap my head around parenting a child who is showing more & more autism signs.  Keep her sensory needs met, especially when she refuses the treatment, which is virtually impossible unless I just let her run & chase after her… which works here at home, but not so much in church in heels & with people watching.  UHG

She’s a gorgeous girl.  We recently got her hair relaxed.  She looks so much older.  If only there was a way to do that same thing to her heart & mind.  Relax.

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Prayers are needed…. Thanks so much.

Pam

Friday, February 17, 2012

Because I have a lot of photos & not a lot of time…

Trying something new, posting a photo, maybe once a day… to keep the blog going & because writing long posts isn’t always necessary or convenient…

Kiahna standing next to the hurdles James leaps in college track…

CRAZY!!

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James is running at Christian Indoor Nationals this weekend…

Kiahna’s behaviors have been on the down hill, up hill, roller coaster this week again…

Pam

Saturday, January 14, 2012

Where we are with Kiahna today

The issues that Kiahna lives with put us all over the map.  We have good days & horrific days.  We have okay days & days that make you think we will never live this way for the long haul.

Recently, things have improved drastically.

We began seeing a new neurologist.

We began Occupational Therapy.

We began services with an agency that is new to our area Meridian

We stopped some medications & began some others.

Today we are in a place where we are living semi-normal lives.  She is stable enough to go places without melt downs.  As long as I stay aware of her sensory needs & don’t let her become over stimulated or worn out.

She has been able to handle the Christmas season with ease.  The transition to home from school for break.  She was invited to play at a friend’s house & dealt with that with ease.

Praise the Lord!

The new neurologist ordered some testing that we had never had done before.  

The first was a sleep deprived EEG

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Thankful for the help that my parent’s gave me preparing for this test.  We were to keep her awake most of the night & then drive her to FW for the testing at 8 am.  They kept her awake so I could sleep & then drive her in to the tests.

After this test we attempted an MRI.  She didn’t cooperate with that.  It’s a scary test!  We had to reschedule that one with sedation, we had to wait for that to be approved by insurance & that is coming up next week.

We just received the results of the sleep deprived EEG & they were abnormal enough that the doctor has ordered more testing.  This testing will require 24 hour admission to the hospital & the EEG will be recorded all during that time. 

The tests will confirm if she has Epilepsy.  She has not had any obvious seizures.  But, the testing was still abnormal enough it can’t be ruled out.  If she has the same issues while she is awake that she has when she is asleep, they will diagnose her Epileptic.

Add it to the list of labels.

When we began the latest medication round we had a great 2 weeks & then the behaviors began again, we increased them & have been on the level for a few weeks again… it’s a day by day thing.  Waiting for the medication to stop working.

Continued prayer is vital.

Pam

Wednesday, October 26, 2011

A very quick update

Hello, I am so sad that I don’t get over here to write more often.  I am not lacking in things to write about, just time to write them.

Please keep us in your prayers.  Kiahna’s behavior continues to bring great concern & tribulation to our lives.  We are learning many things, and getting help, it’s just a painfully slow process that is filled with many bad experiences for her, me, her teachers, classmates…

I am leaning hard on God’s Word & His promises.  Praying for the grace to believe that He is ABLE to do exceeding abundantly more than I could even ask or imagine.  That I am ABLE to do this through Christ who gives me strength.  That HE is faithful & willing to give out HIS wisdom to all who ask…

Believing that.  Living that.  Walking that out.  In the face of many bad days & much discouraging behaviors.  Feeling like you find the solution only to then turn & feel that the rug is pulled out from under you because the behavior returns.

I am headed to conferences this morning.  There are 2 big meetings in the coming weeks as we once again try as a team to find the right help & resources to help Kiahna succeed at life.

Thank you for praying.

Pam

Sunday, September 4, 2011

Little Miss K is Seven Years old!

Celebrating Seven years with my youngest daughter! 

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She had a good birthday, had a better week in school… looking forward to seeing her grow & blossom…

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Striving to keep a positive attitude…

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she loves her new scooter…

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loves first grade & her teacher…

she seems to have settled down into her routine & the school is working with her behavior issues very nicely.

I am trying to not push her limits & over stimulate her, by taking her to ball games and setting her up to fail…

This week was better…

I am hopeful.

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Here’s praying for a good year with lots of health & healing…

Pam

Tuesday, June 28, 2011

In need of a change…

My sweet daughter is so hard sometimes…

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The disease that she lives with is so hard to figure out & so hard to medicate…

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Her moods are all over the place without meds… and her meds help sometimes… other times they don’t… they wear off & life becomes incredible hard for her…

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Hearing “no” is a tragedy in her mind… it puts her over the edge & she can’t pull herself back in on her own…

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Extremely hard…

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The adjustment to our summer schedule has been very challenging… she loved kindergarten & her teacher & her routine…

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She’s even said, “I want my school back”…

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It will be here soon enough… but in the mean-time we have to survive…

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Going for a meds check tomorrow & probably will change something… please pray for us… vacation next week… that’s another thing that is just hard on her… which makes it hard on me… which isn’t vacation…

Pam

Monday, March 28, 2011

Spring Break 2011

We made it home Sunday afternoon from our wonderful, sunny, warm, beach vacation in Florida… it was totally perfect weather, almost too much sunshine, if there is such a thing!  I mean to the degree that we were all pretty roasted & many of us had a little sun poisoning to go along with it.

I honestly don’t know that I have ever been in Florida when it was so nice. 

We are back home to 22 degrees & a water heater that leaked all week in the basement now though…

I have a headache too & didn’t have one of those all week down there!!

I think we should go back.  It’s times like this that you really wonder WHY any of us live in the cold north??  I guess it’s home, and it’s where our family & friends are, so I guess unless we do a mass transition south all together, we will continue to call this home.

I have a lot of photos…

I know, you are shocked…

I’ll post a few a day here, to warm us all up!

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This was the moon setting at 7 on the first morning we were at the condo… it was amazing…

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Kiahna had a really, really good week… I couldn’t have asked for it to go any better with her…

Jadon & Kiahna & I flew down & drove back… from the flight… it went very well.  She was very nervous before we flew, I was a little worried she was going to have a tantrum on me, but she didn’t.

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She took naps almost every day on the beach, I am not sure if she was feeling 100%, it was a little odd for her to nap like that, but she was happy… so I am  not going to try to figure it out!!  She needed her rest on vacation too!!

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Love the lip sunscreen, don’t you!!

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cousins…

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Pam

Sunday, March 6, 2011

Because I really don’t know what to say…

I have found myself shying away from writing probably for more than one reason… I can tell myself “I don’t have time”, but reality is we make time for what we want to do.

I don’t know what to say might be more accurate.

Or, I am so burnt out by the end of the day I don’t have the energy to write about it.

Or, I am so afraid I don’t want to put it into print because the truth is rather painful.

Or, I am fearful of being mis-understood… or mis-representing… or just plain being wrong.

Because with my youngest, I am on a learning curve every day.  Learning about special needs & FAES… things I’ve never been exposed to on a personal level… things that frighten me & discourage me… and keep the future looking very uncertain.

Since the last time I wrote about Kiahna, she has improved in her behaviors dramatically.

I am extremely thankful.

But.

I have been told that I should “enjoy the good days, because history shows that when you have FAS the medications work for a time and then quit working”

The day that Kiahna got the flu, we also began a new medication.  It was secondary to the one she was already on for ADHD. 

ADHD medications have made her act out more violently…

So, we added a “mood stabilizer” to her ADHD med.

When she got the flu, we had a full week of her being very, very docile & sweet.  It was heavenly.  You have no idea.

As she recovered from the flu & her energy returned, we began to see that her behavior was improved. 

The past week of school has went much better than any time before for her.  The teacher reports that she is blending with the other kids & that she is not disrupting the classroom, and other positive things like that.

For me she has done much much better, but when I tried to take her into a store this past week the “overstimulation” was apparent quickly…and we ended up having a stand off before we could get her back home again.

I feel like I let down my guard & began to feel relaxed about her behavior & tried to do something “normal” with her along & got kicked in the gut.

Then we go to the cycle of my fear creating her fear & escalating her behaviors… Jadon escalates her behaviors, they feed off of each other & reactions can get ugly quick.

I am extremely thankful things are going better at school… things are better, but the condition isn’t going anywhere… & we have a long road ahead… which is overwhelming so I’ll just look at the step we need to make today.

In April we need to re-write her IEP.  I have been in touch with another parent who has 2 FAS children & she is going to help write it up & be our advocate. 

I feel like with this improved behavior the temptation might be to overlook many things that the IEP needs to contain… so we have to put in place what we do when she grows & the medication stops working… very,very hard to think about for me.

Moving forward onto today… when I will take her to church & pray she doesn’t have a tantrum… and I’ll take her to my parents & pray that she doesn’t melt down or hurt any of the kids… and I’ll hope to have enough left to ask her to go sit and listen to the swing choir sing tonight… It’s a lot to ask of her… but it’s our life…and I am not sure what else to do.

Pam

Sunday, February 13, 2011

Poor girl…

Today is the 4th day that Kiahna has been sick… I think today is worst yet…

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Doesn’t that just make you so sad…

Hoping this is over soon & no one else gets it!!!!!

Pam

Sunday, January 30, 2011

A better week

Last week was better.

Less fits.

Less anger.

Less overwhelming frustration & panic.

That last one was about me.

First 3 were about Kiahna.

To what do I credit it? 

God. Prayers. Promises Kept.

God’s brought us a better, more knowledgeable counselor, and the means to pay for it.

God’s closed the door on one doctor for medication & opened the door for another with  much more expertise with K’s disability.

God’s provided a school full of teacher’s and administrator’s who love Kiahna & are doing so much to help her.

God’s giving us (ME) the willpower to remove sugar from our diet, along with food coloring.

God’s teaching me to understand more about how Kiahna’s brain processes the world & alleviating my frustration levels.

God’s created medications that are helping a little bit.  Still waiting on Him to open the door with the insurance to approve for the med to be given the way the doctor prescribed & the way that was helping.

Encouraged by K using words to request her preferences rather than just getting angry.

But, realizing that most of the time she still cannot regulate her moods & will take a small issue and make it into s mountain so quickly.

And something that was a small issue one day will be a huge issue the next.  Very unpredictable.

We have a long road ahead… one that may last her lifetime in one way or another… but unlike last weekend, this week I’ve had a few glimmers of hope.

God is Good.

Pam

Saturday, January 1, 2011

First day of the new year…

Christmas 2010 356How are you spending your first morning of this year?

I am looking through recipe books.  Finding recipes that don’t contain milk, white flour, or sugar.

Needing to buy some groceries.

Needing to pack food & clothing for our little family trip that we are going on tomorrow.

Wanting to feel positive and encouraged about the new year.

The old one ended quickly when we tried to spend some time with a large group of friends and my 6 year old bit someone.

My 6 year old who I have recently been told has FASD.  Fetal Alcohol Spectrum Disorder.

As I read and educate myself, I see her fitting more and more into this box.

I find myself fighting tears as I realize this is our life.  It’s not going to suddenly be something she “grows out of”.

I want to get her a t-shirt with a full explanation on the back of her hidden disability & how she really isn’t a bad kid.

As she makes the dog growl for millionth time at my feet.

I met with a new counselor this past week.  One who I believe will help me & her learn & deal with this disability.

I learned of a place in Chicago where I can take her and have a full neuro-physc screening done, that is supposed to be able to tell us what parts of her brain are working properly and which ones aren't.

Those things are encouraging.

When school starts back up again next week we will set up a meeting with all the people who work with her.  We will make her a new IEP based on her new diagnosis.

Will school get better?

Maybe.

Maybe not.

We just tried our 5th medication on her to try to alleviate some of the symptoms.  Fail.

I am learning that FAES is brain damage. 

Diet changes seem to help many people with FAES.  (why I am going through the recipe books)

Neurotransmitters that send messages from the right to left & vice versa sides of the brain don’t fire like they should.  Medications don’t absorb like they should.

Everyone with these disorder is different, because whatever was developing the day that the substance was abused is what was damaged.

I need help.

I know God is providing it. 

Meanwhile, part of me is so hurting.  Grieving.  Aching.  Angry.

Pam

Tuesday, November 16, 2010

Just a little nap…

Kiahna is taking a new medication.  We just increased the dosage.  One of the side-effects is that she is sleepy.  It’s supposed to stop after a few days (if it doesn’t we will lower it again).IMG_8836 copy

She was really asleep.

Teacher said she wasn’t sleepy in school today though, so that’s good.

Pam

Friday, September 24, 2010

Wow… Really?

I think we figured out the reason Kiahna’s behavior has gotten so much worse since starting kindergarten.

I think it’s the medication she was on for ADHD.

I took her to the doctor on Monday, the appointment we have been waiting on for the further testing & evaluations of her behaviors.

She threw a horrific tantrum.

The lady who was meeting with us was extremely understanding & empathetic.  She suggested that we stop the appointment and I come back another day when I can talk without Kiahna with me. 

She also wondered if the medication could be causing some of this.

I couldn’t believe it.

Why didn’t I consider that before?

She started this new medication (the same one Jadon takes) towards the end of the summer, it never even crossed my mind that the medication could be making this worse!!!!

I made another appointment with the doctor who prescribes the meds, visited her yesterday, didn’t give K the old meds.  Got a new ADHD med to try… and we haven’t had a “violent” tantrum (we have had small ones) since then.

The new med is going to take 2-3 weeks to build in her body, could cause the same thing to happen, & meanwhile she is at school virtually un-medicated, hopefully getting along okay.

I am praying her teacher will have the patience for her. 

Jadon has picked up on some of Kiahna’s tantrum habits and has tried pulling some of his own.

These kids keep me on my toes. Or knees. Or both.

James is coming home tonight!

He is bringing a car load of kids back with him.  One is a girl he started dating a couple weeks ago.

That should be interesting.

She’s from the big city… what will she think of our home in the middle of know where on a gravel road? 

Could be very interesting.

Kinda scary for me.

Our football team is playing Saturday, rather than Friday this week.  All the teams in our conference are playing at a college campus about an hour from here.

Makes sense.  Play the team from the school 6 miles away, an hour away.  Logic there somewhere.

It’s about the fun of playing in a big stadium with turf and all I suppose.

We used to play at the Hoosier Dome, can’t afford Luc*as Oil, so we will settle for BSU.

Planning to tail-gate with my family before the 7:00 Game.

Zach’s been getting quite a bit of playing time…

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He’s playing defense, mostly.

I’ve been extremely busy with my photography business… I am so blessed!!  I love it, and it’s great release for me!

I was driving to take the photos for the wedding Sunday, and I just started being filled with doubt… “what am I doing?  I can’t do this!”  But, God is doing it… I turned up my radio & prayed…and God did great!!

Go over and see the photos on my HERE on my photo-blog

Amanda…

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Kadison & Lily…

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John…

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Alicia…

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Blake…

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And lots & lots of Adam & Ashley’s wedding… a peek is posted, more will be coming in the next week!

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Pam

Friday, September 17, 2010

Does this quote startle you?

“The trauma experience does not have to be obvious, and it does not have to be something most people would consider to be shattering or life changing”

Again a quote from the book Beyond Consequences.

I guess it shocks me a little.

I haven’t in my mind been able to equate that trauma can be purely the child’s perception of what happens rather than what actually happened.  We may see it as “not a big deal” or “they were too young to understand or recall”, but their bodies do recall.

“It is important to understand that trauma can be any stressful event that is prolonged, overwhelming, or unpredictable”

As human-beings we are all going to experience these types of things in our lives.  We all process them in our own unique ways.

“if an individual does not have an opportunity to express, process, and understand the event to some degree in a relationship with another human being, then any trauma can become stored within the cells of the body and have and impact on that individual for the rest of his life.”

What I am beginning to understand is that my daughter is feeling the effects of her abandonment trauma… or maybe she had a high stress pregnancy (YA THINK??)  I mean really, anyone who is in the process of giving up their child for adoption is experiencing high stress.  And this is affecting the unborn child in many ways.

So what I am beginning to understand is that even though in my brain I have been wanting to believe that my daughter, adopted at birth, abandoned by her adopted father at one year old, was “too young” to feel the effects of what happened… she wasn’t.

It pretty much began escalating when school started… even though I had enforced 7:30 bed-time & been successful 75% of the time to get it done, she just was so tired when she got home.

Fits of rage about any little thing. 

Me forcing her to nap because, she’s tired.

And after a fit for an hour, I am tired too.

Restraining her so she can’t rip the house up, run away, or hurt someone or herself, but then she hurts me. 

There is no more helpless feeling.

You walk on egg shells.

Never knowing what you are going to say “wrong” that will insight her wrath.

So, I think… after a few weeks of school she will adjust & then things won’t be so bad.

Wrong.

They didn’t get any better.

5 weeks into school.

Tantrums still going on.

So when I hear that stress can cause children who have been through trauma to “heighten stress receptors within the brain.  In this manner, traumatized children will be more anxious, nervous, fearful, and subsequently, more aggressive.”

Could the stress of being in school all day be causing her to display this aggression.

I believe so.

So, then when I ask of her things like, attending football games, family events, telling her “no”…putting away the cookies… or any other simple household task… it sends her into overload.

I am beginning to see her in a new light.

How can I lower her stress?  Expect her to handle less?  Still keep up with the schedule and routine of my 4 older kids at home?

Jadon asked me to come in to school Monday and eat lunch with him.  I hadn’t done that yet this year, so I went in and ate with him.  Of course Kiahna is there too.

After lunch all the kids go outdoors for recess.  I go along.

Part of Kiahna’s IEP was to have assistants for her at recess… see I knew before school began that recess, lunch, and being at school all day very well could be too much for her… the school wanted to try it, and offered special assistance at recess, which hasn’t materialized.

So, I sit on the bench and Kiahna climbs in my lap and cuddles.

And I have this thought.

Maybe, instead of cutting her hours in school (which after Heather Forbes seminar I was thinking was going to be my only option).  I could come in to school and be here for this recess and lunch.  Maybe I could try it for a week and see if it makes a difference.

I spoke with the school guidance counselor about what is going on at home and my thought on helping her de-stress in the middle of the day by coming in and letting her connect with me.

Monday in the van after school she had another tantrum…This tantrum actually brought me more insight into that things causing her stress.

Tuesday, another one, this one at the football game.  She had one at last Friday’s game too.

So.

I am getting it.

She can’t handle more than her day at school.

Don’t ask her to handle more than that.

It won’t go well.

My plan for now.

No bus riding. (she tried it 3 days, it was too much)

I go to school for lunch and recess and reconnect with her.

No ball games, babysitters who will focus on her & let her get to bed on time.

Leah will work on being nice to her when friends are over, or her friends just can’t come over for now.

Over-all working on the responses to her actions (and those of the other kids) reading and learning and understanding better just how she is processing things.

As you may know, we have no medical diagnosis of her issues.  We have finally been approved for testing and go for our first appointment next week.

Regardless of the label, I know the behaviors I am living with, and I know that my prayers are being answered and I am finally getting some tools to work with.

God is Good.

Pam

Thursday, September 16, 2010

Severe Behavior

Things have been just a little, okay A LOT, stressful around home lately.

My youngest is not handling going to all day kindergarten all that well.

Understatement.

I am surprised I have any hair left on my head.

How to explain?

How to verbalize?

I read this recently…

“It’s the violence in my home I wasn’t prepared for.  We adopted a cute little 2 1/2 year old, with the most endearing little dimple that lights up his face when he smiles.  But when he gets angry, he goes into an uncontrollable rage.  It’s as if he is possessed.  He is violent beyond words.  he turns into a wild animal—biting, hitting, kicking, literally assaulting his family, especially me, his mother.  I’m so scared… what is going to happen when he gets older?  I’m terrified that he’s going to really hurt someone.  I never could have believed this kind of violence could be possible from such a small child.  It is so unnerving.”

-- Beyond Consequences, Logic & Control, by Heather Forbes & Bryan Post

Big Breath.

I totally “get” what this mother is saying.

I am there.

It’s really hard to admit that.

I was recently in a counseling session with my daughter.  My daughter was angry I had picked her up from school early to go to the session, and she proceeded to be angry and say angry things to me for 2 hours after picking her up.

2 hours.

So, the counselor observed the behavior.

Her advice.  Keep doing what you are doing, I would tell you to respond exactly the way you are.

Okay.

INSERT MY HEAD BANGING HERE!!

So what you, professional, are telling me is that you have nothing.

But, you see, me not getting angry back and my child is NOT making my child less angry.

So, I say to my daughter, hey you have eaten a lot of animal crackers today, lets put those away and get an apple or something healthy for you instead.

She goes into a violent fit of rage.

Violent.

Trying to hurt me.

Hurt others around our house.

Rip about what ever she can rip apart.

Over cookies?

Really?

I have been praying & praying for some answers.

Tools.

I need tools.

I need education.

I need to understand how to help my daughter process things so that she can become a productive member of society and not a inmate in the state pen!!!!!!!

She’s  6.

I won’t be strong enough to do this much longer.

It has gotten 100 times worse since school started.

Good news is that at this point she saves it all for me.  She is doing okay at school.  Not perfect.   But, okay.

Deep Breath.

I say something to someone about the temper tantrums at home… “well, just keep a thumb on her and it’ll get better”.

I didn’t slap her.

I wanted to.

I wanted to say, lady I have my whole body, soul and mind on her and it just keeps getting worse!!!!!!!!!!

INSERT SCREAM HERE.

Early last week there was a local radio station interviewing author and adoptive parent Heather Forbes.  Heather was scheduled to come to a town near me and speak last Saturday.

THREE people called me to tell me to turn on the radio and listen.

I went and heard her speak last Saturday.

This is what I have to say.

I have hope.

God has heard my prayers.

I am changing things in my life.

I am understanding better the brain of a child who has been through trauma.

I could just cry with relief that someone hears my pleas for help & comes along side.

I will share more as I learn & hopefully have results.

I would appreciate your prayers as I try to make these changes in my parenting & in their lives.

Pam

Sunday, September 5, 2010

Many thoughts…

It’s been a good while since I wrote an update on our family.  I have much to be thankful for & much to continue to be prayerful for.  I’d like to share… If you’d like to hear.

James is home for the weekend!!  He “loves college”!  It is so good to have him here!  To see him in person!  It’s been a long/short 2 weeks since we moved him in & our convos since then have been quick & short & full of “gotta go mom!”  I am thrilled to pieces that he is loving it so much.  I think he’s studying!  I know he had some “shock” going into the first few classes with the amount of homework & papers that would be required.  He’s adjusting to that.  His thoughts, as of now, are that he won’t be back until fall break, mid October.  This is all so strange.  It’s good, just an adjustment!  He’s done a lot of sleeping this weekend… something I am sure they are not doing much of in the dorms!

We pulled my sister’s camper out of the barn yesterday & we have been camping in the back yard (the best kind of camping!! or at least the easiest!!!)  My younger kids are loving it!  My back is hating it!!  Not sure if I can do it another night, but in my heart I would love to try!

We are enjoying football season around here again!   Zach’s been playing mostly jv, but he got in for 2 quarters of varsity last Friday!  He’s much more excited about playing when he is getting some varsity time. 

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Leah really enjoys cheerleading!  She’s such a fun girl to have around!

Her squad at photo day last week!

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Kiahna turned 6 last Sunday.

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My beautiful little girl is dealing with some major behavior issues.  Thankfully, at this point they are mostly just for me & nothing at school (to my knowledge). 

Her tantrums seem to be growing in intensity & frequency. 

I would give anything to know how to help her overcome whatever it is that is causing this in her.  I continue to search & pray for answers.

Last week there was a radio talk show on the FW Christian radio station, & 3 people called me to tell me to turn it on & listen.  It was Heather Forbes, author of the book Beyond Consequences

She is coming to FW this next Saturday & speaking.  I am planning to go.  I ordered her book & I am praying that this may finally be something to lead us towards some help.

Please keep us in your prayers.  Things can’t keep going like this.  She needs help.  I need help. 

A group from our church is coming this week and putting  a new roof on our house!!  How blessed we are for that!!  I have been oblivious to the state of the roof, but apparently there are some major things that need revamped & repaired on it!  THANKFUL God has people looking out for things like that for me, I sure have no clue!!

Now if my washer repair guy would come out & replace the part he ordered for my washer so that I don’t have to hit it with a football cleat to get it into the spin cycle, my life would be… well… better! :)

Pam